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An Exploratory Study of Personal Assistance Service Choice and Decision-Making Among Persons with Disabilities and Surrogate Representatives

Article Publication Date
Summary
This report’s results suggest that surrogates can adequately represent consumer's views about satisfaction with personal assistance, and therefore provide encouragement to continue investigation of the utility of surrogate representatives. The
study results also replicate previous findings that persons with cognitive impairments and persons with severe disabilities are
able to express their preferences for everyday matters.
Article Author
Squillace Ph.D., Marie R.; Mahoney, Ph.D., Kevin J.; Shoop, Ph.D., Dawn M.; Simon-Rusinowitz, Ph.D., Lori; Desmond, Ph.D., Sharon M.
Sources
The Journal of Mental Health and Aging
Programs/Initiatives
Keywords
preferences for everyday personal care; New Jersey telephone survey; PAS choice and decision-making; the dominant perspective in consumer-direction; consumers with cognitive impairments; legitimate
consumers of long-term care;

Contact

Elizabeth
Maguire
National Resource Center for Participant-Directed Services
NULL
elizabeth.maguire.1@bc.edu
Phone
617-552-0562